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Welcome back to Cairdeas.org.uk

John Howlett
15th August 2016

 Hello and welcome to the new Cairdeas site! We’ve been working on the site for over a year and can finally launch it today. Our new home will provide you with:

  • The latest information on our work, past and present.
  • Updates from our team around the world via our Blog
  • A hub for a rich collection of Palliative care resources and links to our global partners
  • Information for prospective mentors, volunteers and fundraisers.
  • An online donation tool and regular donation information.

We relaunch today to coincide with the APCA conference in Kampala, Uganda. As we have a big global collaborative team in Kampala this is a great opportunities to present our ideas and engage with the Palliative care community in internationally.

Please expect some more posts following the conference.

Thanks

Cairdeas

Transforming practise; transforming lives; transforming societies

Dr Mhoira Leng
1st May 2015

Degree students visiting MPCU
One of the great privileges of mentorship and modelling palliative care is seeing the way the experience can transform lives. In Cairdeas and through the Makerere Palliative care Unit we love to have visitors and volunteers who all contribute to the life and work of the unit and leave their mark on our team. Working in palliative care provides opportunities to challenge and change values, to affect our clinical practise but also our attitudes, to develop character and resilience and to reflect on the big issues of mortality, hope and meaning. Daily I am encouraged by those who grasp opportunity with both hands and allow the experience and the time with patients and their families to change their lives. Perhaps in the next post I will include comments and experience from mentors but this time listen to the voice of some of our students and colleagues who have shared the day to day roller-coaster of emotions and the privilege of offering palliative care alongside our team.
Christine with our volunteers on
 Easter Thursday washing our patients' feet
Christine Brennan and Alasdair Pears are both medical students from Aberdeen University who came to do their electives within the Department of Medicine at Makerere University and attached to the palliative care unit. We met in 2014 when I was speaking about Cairdeas at our shared church; Gerrard St Baptist. Elective students have visited us from many universities and countries and we are happy to try and make this a good experience all round. Christine and Alasdair were also joined by Emma New from Oxford Uni and made a great team; including having a lot of fun exploring the beauty of Uganda.
'I am never going to forget what an absolute privilege it has been to work alongside the palliative care team at MPCU. The work that they do has been such an inspiration and encouragement and has changed how I will practice medicine in the future.  The team have shown what true patient centred medical care and empathy is as they strive to provide the best end of life care for their patients.
The skills that the team have are irreplaceable and daily they are improving patient’s knowledge
Alasdair with a small relative

about their illness but also invaluably meeting spiritual needs and support for their family. I have enjoyed being in a different medical setting, especially learning more about palliative care in Africa and how prevalent the need is for this speciality, but also the growth and development occurring aiming to fulfil to meet this need across the country.
The volunteers whom willingly donate their time to listen and pray with patients and their families are precious to both the team and the lives of patients that they reach. Holistic needs of patients are vital and MPCU really do go the extra mile to achieve this.


Team ward round
I would like to thank Dr Mhoira Leng, for this opportunity to come and be a part of the amazing work she does in leading the team at MPCU and the development of palliative care that is coming forth for the availability in other areas of Uganda and other countries within Africa. I would like to encourage support for this work, to enable it to keep moving forward.   It has been a life changing experience that I will treasure, shaping my medical practice and my heart for my future career.'

Emma took the chance to really encourage our team as well. 

'You are a group of wonderful, beautiful human people and your work is so precious and valuable. You have taught me both medicine and life skills and I really, really hope to be able to return to Mulago to work with you in the future.'


Alasdair,Christine and
Emma with our church friends
 at Lugogo Baptist 
Here are the reflections from some of our Ugandan students showing how their palliative care placements and training bring about transformation.

'This has been a wonderful experience. It has taught me to be a better doctor in the future. 5th year med student, Makerere

'The palliative care training has made a huge impact; I now see the patient as a person and not a disease, I don't avoid difficult conversations, I don't order unnecessary investigations, I see them as part of a family, I do holistic care. It was not like that before.' MMed doctor in training, Makerere.

All this must be underlined by the way we teach and care for each other. In the words of a Ugandan nurse in specialist training and placed with MPCU.

 'I have learnt that palliative care is not a team but a family'.

Rwandan MOH with Dr Liz Grant and Diane Mukasahaha
(and me behind the camera)
We have been partnering with colleagues across India, Africa and the UK to strengthen health systems to and bring about transformative change. In particular a 3 year project with the University of Edinburgh and the African Palliative Care Association funded by THET and DFID has enabled us to partner with colleagues in Uganda, Kenya, Rwanda and Zambia. If you want to read more check out  https://integratepc.org/. We will also be sharing a unique day conference between Cairdeas International Palliative Care Trust and the Global Health Academy at the University of Edinburgh along with colleagues from DFID and PRIME. Mark the date,come and join us June 19th. Register via  https://www.eventbrite.co.uk/e/global-perspectives-for-palliative-care-integration-and-health-systems-strengthening-tickets-16784466792. The previous weekend and following day (June 13th and 14th and 20th) will also be opportunities in Aberdeen and Glasgow to hear more about our work (and meet Christine and Alasdair!) We will also be counting down to an awareness raising event soon; watch this space and see us get a bigger social media profile!! One tip; think purple.

Can these individual transformative experiences change systems and even societies? Can palliative care be a vehicle not just for compassionate care but also for strengthened, compassionate health care systems and communities? I firmly believe we are seeing this happen and am humbled to be a part of this along with Cairdeas, MPCU and so any many others in the worldwide palliative care family.
We have been blessed to have a number of colleagues from Rwanda (and many other countries) come
Magnus and  Dr Martin Nyundo from CHUK
 and team members at MPCU
to MPCU to learn about models for integrating palliative care as they seek to develop services in their own country. Thank you Magnus Gasana for all the skills you bring as a clinical psychologist and for your encouragement and vision. I will give you the last word.

'I really highly appreciate the enthusiasm and quality of hospitality you've shown us. This reflects the heart of humanity in health providers. Learning from you empowers us to transform the whole Rwandan society in having a therapeutic culture. We don't doubt that other countries can learn from us as we have learned from you. Yours in solidarity....'


Soul’s worth

Dr Mhoira Leng
19th December 2014

Christmas is full of tradition; food, magical memories of Christmas past, food, parties, presents, more food, singing, joy, laughter and even more food. This is true here on the equator even though there has never been a 'bleak mid-winter' and the sun shines daily. I have my angels on the banana fibre tree, sung carols and eaten mince pies. Listening to an advent podcast I was struck by a meditation on the words of a well known and loved Christmas carol;
O holy night the stars are brightly shining, it is the night of the dear Saviour's birth. Long lay the world in sin and error pining till he appeared and the soul felt its worth.
What a wonderful picture; soul worth....a sense of value and validation and affirmation and grace in a world where there is so much pain and sorrow and conflict and grief. Again we are in a time where around the world there are disasters and conflict; many still dying of ebola, children killed in a school in Pakistan and the grinding reality of homelessness, poverty and loss.
Volunteers. MPCU and hostel party
A ward round in Mulago also shows the gamut of human emotions. We have just finished the examinations for our undergraduates and postgraduates in Makerere; nerves, hard work and the pleasure of seeing young colleagues grow and learn as well as the camaraderie of my examiner colleagues. We climb the hill to visit Betty who has been in hospital for many months but so wants to get home to see her young children this Christmas. She should finally get home tomorrow. Then there is Aloysius who needs treatment but how do we get him across the hospital site when he is so sore with the slightest
Enjoying our love feast Acholi food
movement and there is no ambulance available. Thanks to our volunteers who work tirelessly to help. Charles cant move his legs any more but has a caring family who need to learn how to nurse him and give his painkillers as they take it in turns to sleep under his bed. Little Kamau is full of smiles when we have our Christmas party even though he is getting his treatment for cancer daily. Women from across the region who are all having cancer treatment  joining Kamau and our MPCU team singing, dancing and of course eating food. My Lugogo church family share a love-feast with guest appearance from gospel music star Joyce Babiyre and of course sharing food (I love malakwang and sweet potato from our Acholi friends).
Sophie and Rachel in Kerala
Press in Guwahati
I am spending the next few weeks in Kampala and appreciating a new home (moved across the compound) and freedom from airports for a few weeks. I am reflecting on an amazing year. The past 2 months I have been in 7 different cites in India meeting old friends and colleagues and seeing how much they have achieved; huge congratulations Chitra Venkateswaran and the Mehac team, MR
Rajagopal and the Pallium India team and Dr Gayatri Palat and the MNJ team. Thanks too to Rachel and Sophie on their medical electives from Edinburgh who wanted to learn about palliative care
Moolchand parantha
BCH team Tezpur
in India and took time to float on the backwater with Auntie Mhoira. I was then joined by Dr Gursaran Purewal and Grace Kivumbi (MPCU), Dr Dan Munday (INF Nepal) and Dr Dinesh Goswami (GPPCS) and we travelled to Tezpur in Assam to evaluate the palliative care
programme in Baptist Christian Hospital. Inspiring and encouraging. Thanks Dr Jerine and your team and to the leadership and vision of Dr George Koshy and Dr Ann Thyle. Back to Delhi for a busy research workshop - you cant do better than a colleague saying it was 'perfect'. My favourite part was doing some practical research on the famous Moolchand parantha - mixed views on the hygiene but resounding positives from all who took the taste test.
What is at the heart of all we are doing in palliative care? What is at the heart of what we celebrate at Christmas? What is on our hearts? We search for meaning and purpose. We need to feel we have a role, that we belong, that we have significance, that we are loved. We want to say with our actions and our words you deserve our professionalism, our service, our friendship, our love because you have value and worth. When
Kamau's party time
our volunteers spend hours trying to get a patient the care they need working with the ward staff and families they are saying 'you are valuable and loved'. When our nurses share a quiet moment with a family as they realise this might be the last time Christmas is shared we are saying 'your life has meaning and you will be missed' When our doctors go the extra mile for someone who is in need and suffering we say 'you are made in the image of God; of infinite worth'. When we see and build the skills of our colleagues to enable them to offer values based care and model this in our team we say 'you can change the world one step at a time' When we see each member of our team as different, unique and valued we say ' together we can make a difference' We are also so conscious of the care and love from many across the globe for our work in Cairdeas as well as the wider work of palliative care. Our Christmas appeal this year focuses on building capacity through scholarships for Dr Jack Turyahikayo and Ivan Onapito. Please click on this link if you can support or link it to your friends. https://www.justgiving.com/Richard-Morrison3
Kerala beach
What gives your soul its worth? Perhaps you will be spending time with special 'people sharing, remembering and making new memories. Perhaps you will have moments of wonder; a snowflake, a
Sunset on the Zambezi
sunset, a smiling child, candles glowing glowing in the dark; child's voice singing 'Away in a manger'. I know I can get to this time of year and feel pretty weary; when the day to day frustrations combined with the pressure and busyness of life and cumulative burdens can seem overwhelming. I am so often aware of how often we fail to live up to our expectations and ideals and even just to keep up with the busy agenda. Yet this is a time of grace and renewal and hope. A time of hope and rejoicing because the Saviour has come and our souls have felt their worth...May you have a wonderful Christmas and full of hope for all 2015 will bring.
O holy night the stars are brightly shining, it is the night of the dear Saviour's birth. Long lay the world in sin and error pining till he appeared and the soul felt its worth. A thrill of hope the weary world rejoices, for yonder breaks a new and glorious morn. 
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